We went to Sungai Petani yesterday. Supposedly to take Nadiah swimming at the club. But in order to get there we had to drive passed Tesco. At first it was all quiet when we passed Tesco. Then suddenly we could hear a small voice whimpering at the back of the car. The poor girl wanted to go to Tesco.
So we made a quick stopover at the chalet to leave mom's rendang in the fridge for Bro#1 to pick up later on. Then turned around and Nadiah didn't even glanced at the swimming pool. So much for our plans to take her swimming.
Anyway, we spent an hour or so at Tesco and drove back to Alor Star right after. In the car, Nadiah was throwing a fuss because she wanted something. She kept grabbing my hand and pushing me to get something for her. I kept asking her "what do you want?" and she finally said "susu".
Ok, that was good. At least she tells me what she wants. She used to ask for, and said the word "susu" quite a lot a long time ago. But has stopped using the word lately.
So I started to take out her bottle, water and milk powder. Then I realised that I've forgotten the hot water. I had left it in the boot of the car. Darn it!!. Hubby said to make the milk without the hot water. Nadiah's not going to mind anyway.
So I had mixed everything sans hot water and passed it along to Nadiah. But she kept pushing my hand away, mumbling and looked as if she's about to have a fit. I kept pressing her asking "What do you want? Tell me what you want". I showed her the bottle of mineral water and the milk powder container but she still kept on protesting. I was about to lose my patience. First she said she wanted milk, now she's refusing her bottle. Frustration was starting to boil up my spine but I try to tempt it down.
And then suddenly, she just up and said "HOT!". Just that one word: HOT and me and hubby dissolved into laughter. We just couldn't believe that she knew what was going on.
Sometimes it's so frustrating to see that Nadiah's progress seems to be stagnant; it's as if all our hopes and hard work are not going anywhere. At times I feel like giving up when she would retract and go into her own world again. But it's incidents like these that gives us the strength to go on. It's not a question of her not being aware of her surrounding, but it's how we get her to come out and communicate, say them all out, relay what is in her head.
Anyway, back to the HOT scene: we couldn't stop on the roadside as we were smacked in the middle of the highway and had passed all R&Rs. Finally we got to the toll booth and stopped at the side of the road to fill up her bottle with hot water. But only after having to get her to settle down, telling her to be patient; which I might say wasn't the easiest thing in the world to do. Thank God it was only 10 minutes or so.
I found this link:
Everyday Autism
It's an introduction to autism. Click away if you would like to know more about autism and how the family live and cope with the disorder. It's a video so turn up your speakers (or slip on your headphones).
So we made a quick stopover at the chalet to leave mom's rendang in the fridge for Bro#1 to pick up later on. Then turned around and Nadiah didn't even glanced at the swimming pool. So much for our plans to take her swimming.
Anyway, we spent an hour or so at Tesco and drove back to Alor Star right after. In the car, Nadiah was throwing a fuss because she wanted something. She kept grabbing my hand and pushing me to get something for her. I kept asking her "what do you want?" and she finally said "susu".
Ok, that was good. At least she tells me what she wants. She used to ask for, and said the word "susu" quite a lot a long time ago. But has stopped using the word lately.
So I started to take out her bottle, water and milk powder. Then I realised that I've forgotten the hot water. I had left it in the boot of the car. Darn it!!. Hubby said to make the milk without the hot water. Nadiah's not going to mind anyway.
So I had mixed everything sans hot water and passed it along to Nadiah. But she kept pushing my hand away, mumbling and looked as if she's about to have a fit. I kept pressing her asking "What do you want? Tell me what you want". I showed her the bottle of mineral water and the milk powder container but she still kept on protesting. I was about to lose my patience. First she said she wanted milk, now she's refusing her bottle. Frustration was starting to boil up my spine but I try to tempt it down.
And then suddenly, she just up and said "HOT!". Just that one word: HOT and me and hubby dissolved into laughter. We just couldn't believe that she knew what was going on.
Sometimes it's so frustrating to see that Nadiah's progress seems to be stagnant; it's as if all our hopes and hard work are not going anywhere. At times I feel like giving up when she would retract and go into her own world again. But it's incidents like these that gives us the strength to go on. It's not a question of her not being aware of her surrounding, but it's how we get her to come out and communicate, say them all out, relay what is in her head.
Anyway, back to the HOT scene: we couldn't stop on the roadside as we were smacked in the middle of the highway and had passed all R&Rs. Finally we got to the toll booth and stopped at the side of the road to fill up her bottle with hot water. But only after having to get her to settle down, telling her to be patient; which I might say wasn't the easiest thing in the world to do. Thank God it was only 10 minutes or so.
I found this link:
Everyday Autism
It's an introduction to autism. Click away if you would like to know more about autism and how the family live and cope with the disorder. It's a video so turn up your speakers (or slip on your headphones).
3 comments:
Sungguh penyabar kawan aku! :) Proud of you, dont think I cd handle the situation if I were you ...
Thanks CS but don't underestimate your own strength. You'll never know what you can or cannot do until you're faced with a situation... :)
i can totally relate to you....there were times that adriana threw tantrum and we do not know what to do. It frustrated both of us, but we are learning and hoping for the best.
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